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Praxis SCI Accelerate 2020 Survey

Information and Consent

Introduction
The Praxis SCI Accelerate 2020 Survey (the “Survey”) has been developed to facilitate the objectives and goals of the Praxis SCI Accelerate Program 2020. This is a 12-week acceleration pilot program for health start-up companies with solutions that address care- and cure-related treatments and overall quality of life of individuals with spinal cord injury (SCI). Located in Vancouver, Canada, the program is designed for post-prototype companies to scale their innovations quickly. We pair our expertise in SCI research, knowledge translation, direct consumer engagement and commercialization.

This Survey is a part of our direct consumer engagement. We need to learn more about your experiences in four specific areas:

  1. spasticity,
  2. pressure injuries and skin integrity,
  3. self-catheterization, and
  4. wrist/forearm function.

We are interested in hearing from anyone 18 years of age or older who is living with SCI.

This Survey is being delivered using University of British Columbia’s secure survey tool, Qualtrics.

The data from this survey will be analyzed to find out what the SCI consumer needs are in relation to medical devices.

Procedures
The Survey is voluntary and available via the internet here. If you decide to participate in the Survey, you may answer as many questions as you wish. The Survey includes questions to help us provide the most up-to-date critical information regarding the how spasticity, pressure injuries and skin integrity, self-catherization, and wrist/forearm function affects you. This information is critical for the Praxis SCI Accelerate Program 2020 cohort of companies in their development and commercialization of products and services that will directly impact those living with SCI.

It is estimated that the Survey will take 10 to 15 minutes to complete.

Risks and Benefits
We do not anticipate any harm will be caused to you by completing the Survey. Some of the questions we ask may seem sensitive or personal. You do not have to answer a question in the Survey if you do not want to.

You may benefit from the Survey if these companies are successful in their efforts to develop and commercialize their products and services.

Privacy and Confidentiality
You will participate in the Survey anonymously (without providing any identifying information).

At the end of the Survey, you will be given an option to provide your contact information if you would like to enter your name in one or more of the following:

  1. A draw for a $100 Amazon gift card.
  2. Participate in an upcoming consumer focus group.
  3. Receive information about Praxis Spinal Cord Institute.
  4. Receive information about the five companies selected to participate in Praxis SCI Accelerate 2020.

Your privacy and confidentiality will be respected at all times. You will not be identified in any reports, and information that discloses your identity will not be released.

The platforms used to collect Survey and registration data are fully compliant with FIPPA. The Survey data is kept secure, and is stored and backed up in Canada.

Data Access and Storage
The Survey data will be safely stored within the secure computer network of UBC. After Survey data is downloaded onto UBC’s secure network folders, it will be encrypted to protect the information. Access to Survey data will be strictly limited to the Survey project team. All analysis of Survey responses will be reported in aggregate to ensure participant confidentiality. Data will only be used for the purposes of the Praxis SCI Accelerate 2020 Program as outlined in this Form.

Sharing the Results
The only generalized results from this Survey will be made available to the companies participating in the Praxis SCI Accelerate 2020 Program and may be publicly used by Praxis on their website in the form of reports and graphics. Any information released will be summarized and will not identify any participant.

Questions or Concerns
If you have any questions about the Survey, contact the Survey project team at SCI_Accelerate@praxisinstitute.org.

Participant Consent
Your participation in this Survey is completely voluntary.

You are free to withdraw at any time. At the end of the data collection and, once the data have been analyzed and made publicly available at an aggregate level, participants will be unable to withdraw their Survey data.

By completing the Survey, you agree that consent has been given.