Celebrating Two Decades of Excellence: RHSCIR 20th Anniversary

This year marks the 20th anniversary of the Praxis-led Canadian SCI Registry (RHSCIR), which has made remarkable progress and accomplishments in the field of spinal cord injury research and care. As the registry has grown over the years, it now includes 30 sites across Canada. It has contributed to the creation of a strong national network that aims to improve the lives of those with spinal cord injuries.

With the launch of our web-based electronic data capture system in 2012, we took a significant step forward in our data management. This innovation has streamlined our processes and enhanced the quality and accessibility of the data we collect.

The RHSCIR has always been at the forefront of SCI research and care, and in 2020, we broadened our scope to include data on non-traumatic SCI. Today, our registry has over 13,000 participants, providing a rich, diverse dataset that can be used for a wide range of clinical and research studies.

Some of Our Highlights:

  • Best Practices: Developed and implemented best practices that significantly impact SCI care and research.
  • Outcome Measures: The network emphasizes the importance of outcome measures for evaluating interventions and treatments, monitoring recovery, and improving healthcare services. These measures also support vital research efforts.
    • 79% of rehab sites use the Spinal Cord Independence Measure (SCIM) to assess various aspects of daily living.
    • 100% of acute and rehab sites use the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) to determine the neurological level of injury.
    • 89% of rehab sites use the Standing and Walking Assessment Tool (SWAT) to evaluate walking ability after an injury.
  • Registry Data Impact: Our data has informed the development of technology for people living with SCI through 37 start-up companies, facilitated by Praxis SCI Incubate, SCI Accelerate, and Validate programs.
  • Supporting Tools and Sub-Studies: The registry has supported multiple tools and sub-studies, including SWAT, SCIM, neurology toolkits, MRI sub-studies, and more.

As we celebrate this milestone, we extend our deepest gratitude to all the staff, clinicians, researchers, and individuals living with spinal cord injury who have contributed their valuable time and experiences. Your efforts have made this work possible, driving advancements that continue to improve the lives of many.

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