Spinal cord injury (SCI) consumers are individuals with lived experience, including people with SCI, their family and friends, as well as consumer-focused community organizations and advocacy groups. Engagement occurs when consumers have a meaningful and active role in decision-making, setting priorities, conducting research, and translating research knowledge for the benefit of its intended users.
Consumer engagement is most effective when there is an environment of inclusivity where consumers are provided the supports needed to contribute fully and are part of mutually respectful teams from the outset of projects.
The Consumer Engagement Program at Praxis includes
five individuals living with SCI. It was created to engage the spinal cord injury community to become more involved in research, healthcare and advocacy.