Spinal cord injury (SCI) persons with lived experience (PLEX) are individuals with lived experience, including people with SCI, their family and friends, as well as PLEX-focused community organizations and advocacy groups. Engagement occurs when PLEX have a meaningful and active role in decision-making, setting priorities, conducting research, and translating research knowledge for the benefit of its intended users.
PLEX engagement is most effective when there is an environment of inclusivity where PLEXs are provided the supports needed to contribute fully and are part of mutually respectful teams from the outset of projects.
The PLEX Engagement Program at Praxis includes
four individuals living with SCI. It was created to engage the spinal cord injury community to become more involved in research, innovation, healthcare and advocacy.