Providing Insights To RHSCIR
Praxis provides ongoing data support for RHSCIR – our national SCI registry – by supporting site data collection from the onset of a person’s injury, through their hospital stay and once they have returned to the community. Data collection includes the following categories:
- Demographics – age, sex, city, province and country of residence
- Socio-demographics – societal characteristics including occupation, education, household income, relationship status, living setting, height, and weight
- Medical history – prior and current (post-injury) health status, including alcohol use, drug use, and other medical conditions
- Injury details – cause of SCI, date and time of injury
- Diagnosis – specific information describing the location of the SCI and any other secondary injuries or complications, including diagnosis code and location
- Neurology – information describing the level and severity of SCI sustained, including motor and sensory scores, neurological level of injury, and ASIA Impairment Scale (AIS)
- Admission/discharge – admission and discharge information outlining the movement of the individual through each care centre, including facility name, date of admission, admission category, and date of discharge
- Procedures – details outlining the primary operative procedure to stabilize the spinal column, including operative date, type of approach, type of implant used, neural elements decompressed and intraoperative adverse events
- Interventions – information detailing specific elements of care provided, including ventilation and rehabilitation therapies
- Outcomes – information detailing specific measurements of physical functioning secondary to SCI, including quality of life, respiratory function, bowel and bladder management, pain description and management, spasticity, pressure injuries, and other secondary complications
