A podcast conversation about Activity-Based Therapy (ABT), a novel intervention used to improve recovery for people with spinal cord injury. Spinal Moves is brought to you by the ABT Community of Practice.
Hosts Hope Jervis Rademeyer and Anita Kaiser chat with people living with spinal cord injury, clinicians who work in neurological settings, and researchers who study activity-based therapy. This series is produced in coordination with Hope Jervis Rademeyer, Anita Kaiser, Praxis Spinal Cord Institute, and the ABT CoP. The first episode released on January 13, 2021.
Spinal Moves Hosts
Hope Jervis Rademeyer is a physical therapist and PhD candidate in Rehabilitation Science at the University of Toronto. Her thesis project investigates the use of technology to augment traditional rehabilitation for people with spinal cord injury or disease. She also works in private practice with a focus on sport performance.
In her spare time, she runs long distances and has completed trail races up to 100 miles.
Anita Kaiser is a Vanier Scholar and doctoral student in Rehabilitation Sciences at the University of Toronto. Her research specializes in the development of tools to track participation and performance for individuals engaged in activity-based therapy. Anita is the Director of Research for the Canadian Spinal Research Organization and a Research Trainee at KITE-Toronto Rehab-University Health Network. In her spare time, Anita models for Izzy Camillleri’s IZ Adaptive Clothing.
Episode 01: An Introduction to Activity-Based Therapy for Spinal Cord Injury Rehabilitation
In this episode we speak with Dr. Kristin Musselman, PT, PhD (Assistant Professor, U of T and Scientist at KITE) and Kristen Walden, PT (National Clinical Liaison, Praxis Spinal Cord Institute) about the definition of activity-based therapy (ABT) and what makes it unique compared to other types of rehabilitation. We also discuss the ABT Summit that resulted in the formation of the Canadian ABT Community of Practice (ABT CoP). Both the ABT CoP and Praxis Spinal Cord Institute have been instrumental in sharing information about ABT across Canada.
Dr. Kristin Musselman is a physical therapist, Assistant Professor in the Department of Physical Therapy at the University of Toronto, and a Scientist at KITE-Toronto Rehabilitation Institute. She completed BSc degrees in Life Sciences and Physical Therapy at Queen’s University in Kingston, ON, and an MSc in Neuroscience and PhD in Rehabilitation Science at the University of Alberta. Dr. Musselman was a Post-doctoral Fellow at the Johns Hopkins School of Medicine and Kennedy Krieger Institute from 2010-2013. The overarching aim of Dr. Musselman’s research is to develop innovative, clinically feasible approaches to restore movement, function and participation for individuals living with complex neurological disease across the lifespan.
Kristen Walden, BScPT, is currently a National Clinical Liaison for the Praxis Spinal Cord Institute and a physiotherapist at Vancouver Coastal Health. Clinically, she has practiced in the area of spinal cord injury for over 19 years, working with individuals in intensive care, acute care, as well as both inpatient and outpatient rehabilitation settings. In her role at Praxis, Kristen works on a number of research and best practice initiatives, with the aim of improving care for individuals with SCI/D across the country.
Episode 02: Activity-Based Therapy for Spinal Cord Rehabilitation: Perspectives from People Living with Spinal Cord Injury
In this episode we speak with Chris Rice, Andrea Nelson and Anita Kaiser. These guests have been living with spinal cord injury and each one has a unique journey with ABT. From dancing to kayaking to research, we discuss the gains they have made, and their individual accomplishments. We also find out how they learned about ABT and their approach to exercise.
Anita Kaiser is a Vanier Scholar and doctoral student in Rehabilitation Sciences at the University of Toronto. Her research specializes in the development of tools to track participation and performance for individuals engaged in activity-based therapy. Anita is the Director of Research for the Canadian Spinal Research Organization and a Research Trainee at KITE-Toronto Rehab-University Health Network. In her spare time, Anita models for Izzy Camillleri’s IZ Adaptive Clothing.
Andrea Nelson is an L1 incomplete paraplegic who is ambulatory and uses both a manual wheelchair and forearm crutches to get around. She was injured in 2017 in a skydiving accident and has been doing ABT consistently for the last 3 years. She loves being outside and staying active with activities like hiking, biking, and kayaking.
Chris Rice sustained an incomplete C7 spinal cord injury in 2012. He has been participating in ABT both at home and at a facility in Newmarket, Ontario since that time. He continues to see consistent progress in his recovery and is always seeking new treatment options. Chris recently went skydiving with a friend of his who is also a paraplegic.
Episode 03: Clinicians from Across the Healthcare Continuum Discuss Activity-Based Therapy for Spinal Cord Injury Rehabilitation
John Cobb from British Columbia, Shane McCullum from New Brunswick and Sandi Marshall from Saskatchewan discuss their views on activity-based therapy across the healthcare continuum. John, an occupational therapist, works on a dedicated acute spinal cord injury unit at Vancouver General Hospital. Shane, a physical therapist and researcher at Stan Cassidy Centre, works with inpatients and outpatients. Sandi, a kinesiologist, is located at First Steps Wellness Centre that provides community access to ABT.
John Cobb, BScOT graduated from the University of British Columbia School of Occupational Therapy in 1993. As a student, it was on the Acute Spinal Cord Injury Unit that he recognised he wanted to devote his time and skills to this unique population. 28 years later, John is still with the Acute Spine Unit and is the senior occupational therapist. He has participated in clinical work, teaching, and SCI-based research and program development projects.
“I enjoy the variety of my work activities. As an occupational therapist, you must continuously problem solve the challenges that patients face and limit their ability to perform everyday activities. Working with people with new spinal cord injuries really puts that to the test. Helping patients learn to feed themselves, drive a power wheelchair, write their name… become more independent is very rewarding.”
When not at work, John enjoys golfing, cooking and international travel – but mostly enjoys having fun with family and friends.
Sandi Marshall is the Manager at First Steps Wellness Centre in Regina, SK. She obtained her Bachelor of Kinesiology from the University of Regina and after working in healthcare for five years joined the First Steps team in 2013 as an Exercise Therapist. Initially working mainly with adults with spinal cord injury, Sandi led the expansion of First Steps to include a Children’s Neuro Rehabilitation ABT Program. Over the past 3 years the Children’s Program has become the most comprehensive in Canada and has proven to be a passion for Sandi.
Shane McCullum, MScPT is currently the Clinical Trials Manager at the Stan Cassidy Centre for Rehabilitation (SCCR) in Fredericton, New Brunswick. He has worked with patients with neurological conditions for 11 years, beginning as a clinician (Physio) and as a researcher for the past 9 years. Shane has been a coordinator for the Rick Hansen SCI Registry at SCCR since 2011, and has been a part of the Standing and Walking Measures working group since its formation. He has worked on several projects during his years as a researcher but has a special interest in research into mobility improvements and functional electrical stimulation (FES).
As it pertains to ABT, Shane participated in the Canadian ABT Summit in March 2018, and has been involved in several National working groups since that including the ABT Inventory and Dissemination groups, and most recently has joined the Steering Committee for the Canadian ABT Community of Practice. He is Level 2 trained to use the Ekso Bionics exoskeleton, and has logged many hours of use with people with SCI and other diagnoses (MS, ABI, CP). He has experience using many FES devices including the RT300 FES Cycle and XCite from Restorative Therapies; Bioness H200 and L300; and an adapted FES Rower with Odstock stimulator. Shane is the proud father of 2 little boys (Duncan 2 and Alex 4 months) and before kids was a pretty good golfer.
Episode 04: Trainees Share their Passion and Research in ABT and Discuss Capacity Building for this Emerging Field
In this episode, Hope Jervis Rademeyer, PT, PhD candidate, Lovisa Cheung PT, PhD student and Dr. Cindy Gauthier, PT, postdoctoral fellow – all research trainees in the SCI-Mobility Lab at the KITE, Toronto Rehab, University Health Network – are featured. These guests describe their research which explores the clinician’s perspective of ABT in the neurorehabilitation and community setting. We will also discuss ways to build capacity and encourage more students to take an interest in this field of study as a career path.
Lovisa Cheung BScKin, MScPT Candidate, is a doctoral student in Rehabilitation Sciences at the University of Toronto. She completed her BSc (Kinesiology) at McMaster University and her MScPT at the University of Toronto. She has been involved in research studying activity-based therapy for individuals with spinal cord injury, and her future research will involve studying athletes with neurological conditions including spinal cord injury and cerebral palsy. In her leisure, Lovisa is a dog-mom who enjoys camping, hiking, and training in the sport of Olympic weightlifting.
Dr. Cindy Gauthier is a physiotherapist who graduated from the Université de Montréal in 2013. She did her PhD degree under the supervision of Dr. Dany Gagnon form the Université the Montréal and Dr. Audrey L. Hicks from McMaster University. In 2018, she obtained her PhD from the School of Rehabilitation of the Université de Montréal. In 2019, she joined the SCI-Mobility Lab for a postdoctoral fellowship with Dr. Kristin Musselman after being awarded with The Rick and Amanda Hansen Fellowship, in partnership with Praxis and ONF. During her fellowship, she is studying the effects of electrical stimulation during functional activity and activity-based therapy trainings among individuals with spinal cord injury. She is also part of the Canadian ABT Community of Practice.
Episode 05: Research on Therapy Intensity and High-Tech Devices for Activity-Based Therapy
In this week’s Spinal Moves episode, we talk to Dr. Chester Ho, Dr. Laurent Bouyer, and Dr. Domink Zbogar. They discuss their research on functional electrical stimulation (FES) stationary cycles, exoskeletons, and the Spinal Cord Injury Research Evidence (SCIRE) network. Research on therapy intensity in a hospital setting is presented, followed by a discussion about technologies that could potentially improve the intensity of therapy for ABT.
Dr. Chester Ho is a clinician, researcher, and health services administrator. His academic work integrates all three aspects of his career so that it will directly impact the lives and well-being of persons with spinal cord injury (SCI). He has a special clinical and research interest in the rehabilitation of persons with SCI, specifically on the management and rehabilitation of complications following SCI, such as pressure injuries and the use of functional electrical stimulation in the promotion of function and mobility, as well as on the health services delivery of SCI rehabilitation.
A major focus of his work is on the implementation of evidence-based treatments such as FES cycling for exercise training after SCI. He has created a regional program for the use of FES cycling that spans from the inpatient rehabilitation setting to the community in Calgary, Alberta. He is in the process of creating international, evidence-based clinical practice guidelines on the use of FES cycling after SCI, which will facilitate further clinical adoption of this treatment. He is also collaborating with Dr. Vivian Mushahwar as a co-investigator to her research project (funded by the Canadian Institutes for Health Research), which studies the use of arm and leg cycling in functional gait improvement after SCI.
Functional electrical stimulation can be used in many ways to improve the health and functions of persons with SCI. Dr. Ho has held academic positions at both the Cleveland FES Center and the University of Alberta, two of the main hubs for SCI research in North America. This has allowed him to collaborate with other researchers in FES and to facilitate the knowledge translation of FES to clinical practice. Dr. Ho has numerous peer-reviewed articles and book chapters on pressure injuries. He co-authored the Wounds Canada Best Practice Recommendations for the Prevention and Management of Pressure Injuries as well as the Consortium of Spinal Cord Medicine Clinical Practice Guidelines on PressureUlcer Prevention and Treatment Following Spinal Cord Injury, 2nd edition.
Dr. Domink Zbogar grew up in Toronto, where he studied Kinesiology at York University to pursue his MSc at the University of British Columbia, investigating exercise response in spinal cord injury. He continued his work in SCI research, completing a PhD in the Faculty of Medicine, with work aimed at opening the “black box” of SCI rehabilitation. Today Dominik works as the Research Coordinator of SCIRE Community, an online knowledge translation resource that makes SCI research available and understandable for everyone.
Dr. Laurent Bouyer received a BSc degree in Honors Neurophysiology from McGill University in 1990 and then a PhD from the Aerospace Medical Research Unit at McGill in 1996. He then completed a postdoctoral fellowship at Université de Montréal on animal models of motor control after spinal cord injury (1996-2001). He is now a full-time Professor in the Department of Rehabilitation at Laval University, the Director of the Neuroscience Research Center, and a Researcher at the Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS).
His research program focuses on motor control and motor learning. Most of his research projects are carried out in interdisciplinary teams that combine health sciences and engineering, covering many facets of rehabilitation research. His research interests include understanding the neural circuitry underlying human movement control, measuring electromyography and movement both in the lab and in the real world, improving clinical tests using wearable sensors, characterizing early indicators of muscle fatigue during complex movements developing new robotic technologies and software for rehabilitation. He has published over 100 articles in peer-reviewed journals on motor control, motor learning, and rehabilitation technologies. He has also given over 50 oral presentations at national and international conferences.
Episode 06: Spinal Cord Stimulation, Models of Healthcare and Access to ABT
In this week’s episode, insights on transcutaneous and epidural stimulation are discussed, along with pairing spinal cord stimulation with ABT by Dr. Sukhvinder Kalsi-Ryan and Dr. Andrei Krassioukov, Dr. Adalberto Loyola-Sanchez talks about receiving patients who have had stimulation implanted abroad, access to healthcare and ABT, and the new CONCENTRIC model of care for spinal cord rehabilitation.
Dr. Sukhvinder Kalsi-Ryan is a Clinician Scientist in the field of upper limb assessment and recovery and spine pathology at KITE Research Institute-UHN, and is also an Assistant Professor at the University of Toronto, Department of Physical Therapy. Her research is oriented to establishing methods to quantify neurological change after injury and studying neuro-restorative methods to enhance and optimize function for those with neurological impairment.
In her current role as the PI of the Upper Extremity Neuro-Restorative Innovations Lab and Lead of the Rocket Clinic-North, she builds a strong research foundation that will propel the clinic, enhancing access to care for patients with spinal cord injury (SCI) and implementing new innovations and technologies. Dr. Kalsi-Ryan provides academic teaching within the Neurosurgical Resident training and Physical Therapy programs at the University of Toronto. She is the founder of her own company, which manufactures the GRASSP and acts as a consultant for neurological trials worldwide. Her interests include: outcome measurement, upper limb recovery, traumatic and non-traumatic SCI, quantification of neurological disorders and sustainability of research enterprises.
Dr. Andrei Krassioukov is a clinician-scientist and an internationally recognized leading expert in the area of autonomic dysfunctions and rehabilitation of individuals with SCI. He is currently a professor at the Division of Physical Medicine and Rehabilitation, Department of Medicine, and Associate Director and a Scientist at the International Collaboration on Repair Discovery (ICORD). Prof. Krassioukov also holds an endowed Chair position in Spinal Cord Rehabilitation Research at the University of British Columbia and International Autonomic Standards Committee for the American Spinal Injury Association and International Spinal Cord Society (ASIA/ISCoS). He is also a Staff Physician at the SCI program at the GF Strong Rehabilitation Centre in Vancouver.
Prof. Krassioukov’s research is focused on autonomic dysfunctions following SCI and his laboratory is supported by grants from the Canadian Institute for Health Research, Heart and Stroke Foundation, Canadian Foundation for Innovation, Praxis Spinal Cord Institute, Rick Hansen Foundation, Craig Neilsen Foundation, Christopher and Dana Reeve Foundation, Wings for Life and many others. He has published more than 300 peer-reviewed manuscripts, books, book chapters and reviews. He is a member of numerous advisory boards for the international agencies involved in research in the area of SCI and disability. Prof. Krassioukov’s works in the area of SCI has been recognized through numerous national and international awards, including the inaugural Alan Brown Award from American Spinal Injury Association (ASIA). Prof. Krassioukov was inducted as a fellow of the Canadian Academy of Health Sciences. Presently, Dr. Krassioukov is the President of the American Spinal Injury Association (ASIA).
Dr. Adalberto Loyola-Sanchez, earned his MD, Specialist in Physical Medicine and Rehabilitation from Universidad Autónoma de México, MSc and PhD in Rehabilitation Sciences from McMaster University and is currently the Assistant Professor, Division of Physical Medicine & Rehabilitation/ Department of Medicine at University of Alberta.
Dr. Loyola-Sanchez has been working on developing a program of research to design, implement and evaluate community-based rehabilitation programs for people living with disabilities produced by chronic illnesses in outreach communities. This program has mainly focused on underserved populations. He is currently working clinically in the SCI program at the Glenrose Rehabilitation Hospital in Edmonton and, together with Dr. Chester Ho, is leading a Canadian Institute of Health Research (CIHR) funded project to create a hub and spokes system through a community based participatory research strategy developing a model of care to improve the transitions of care for people living with SCI in Alberta.
Dr. Loyola-Sanchez is the new principal investigator of the Rick Hansen Spinal Cord Injury Registry-Edmonton site and is leading a community-based initiative to increase the sense of community for people living with SCI, service providers, and family in the Province of Alberta, utilizing a monthly webinar format. This initiative is known and the Spinal Cord Injury Community of Interactive Learning Series (AB-SCILS). This work has led to collaborations with community services that focus on Activity-Based Therapy.
Episode 07: An Inspirational Journey Towards Starting Up an ABT Community Clinic
In this episode, we talk with Bean Gill and Heather Cairns-Mills about what made them decide to open up an ABT center in their communities. We discuss the steps involved in how they got started, challenges along the way, and their future plans for growth and expansion. These guests will also share advice to others considering opening their own ABT center in their community, and how to expand access so they are more widely available.
Bean Gill graduated from the Northern Alberta Institute of Technology in 2003. Born in Edmonton, Bean grew up to become an x-ray technologist whose career was cut short by a virus that left her paralyzed from the waist down in July 2012. Now, she successfully runs a growing non-profit organization called ReYu Paralysis Recovery Centre, and is changing the way the public sees people with disabilities.
Bean advocates for equality in ALL aspects and uses her voice to raise awareness. Some of her accolades include Global’s Woman of Vision Award, Top 40 Under 40, RBC’s Women of Influence Award, and is the reigning Miss Wheelchair Canada….a few steps forward in her plan to change the world.
Heather Cairns-Mills is the Founder and President of Walk It Off Spinal Cord Wellness Centre Inc. She received her BA in Psychology from York University and spent 3 years studying physical education. In 1995, Heather earned her Certificate in Ambulance and Emergency Care from Centennial College and later received Provincial Advance Care Paramedic Certificate from Sunnybrook Center for Prehospital Medicine.
As a paramedic, she worked for 14 years throughout the province in Simcoe County, Halton/Mississauga, and with Toronto Paramedic Services (TPS). While working for TPS, she assisted in spearheading the Canadian Window Balcony Fall Prevention project with the EMS Chiefs of Canada. Her experience includes supervising the Toronto Heat Alert Paramedic Program.
Heather has have been her husband, Kevin Mills’, primary caregiver since his accident in February of 2009. Kevin sustained a C4/5 ASIA A SCI when a wave drove him headfirst into the sand. They tried many therapies but found an ABT program in the United States that brought some amazing results changing their lives. After 2 years of multiple trips to the States, they decided to fundraise to bring the program to Canada and founded Walk It Off, a not-for-profit ABT neuro-recovery facility in Newmarket, Ontario.
Kevin and Heather have experienced the medical system as both providers and patients. They have learned through their experiences that you must seek and strive to provide the best care possible for your loved ones, and Kevin and Heather strive to do this for all who attend Walk It Off.
Episode 08: Season One ABT Highlights With Your Cohosts Hope Jervis Rademeyer and Anita Kaiser
In this episode, co-hosts Hope Jervis-Rademeyer, PT, PhD candidate and Anita Kaiser, MSc, PhD student, recap highlights from each of the previous episodes. They will share their favorite stories, key takeaways and the one piece of information that stuck with them the most. If you haven’t had the chance to listen to all seven episodes, you can get a quick peek here.