Data Services

Accurate data is essential for maintaining the integrity of research, enabling changes in care and supporting evidence-based decision-making and advocacy.

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Providing Insights To RHSCIR

Praxis provides ongoing data support for RHSCIR – our national SCI registry – by supporting site data collection from the onset of a person’s injury, through their hospital stay and once they have returned to the community. Data collection includes the following categories:

  • Demographics – age, sex, city, province and country of residence
  • Socio-demographics – societal characteristics including occupation, education, household income, relationship status, living setting, height, and weight
  • Medical history – prior and current (post-injury) health status, including alcohol use, drug use, and other medical conditions
  • Injury details – cause of SCI, date and time of injury
  • Diagnosis – specific information describing the location of the SCI and any other secondary injuries or complications, including diagnosis code and location
  • Neurology – information describing the level and severity of SCI sustained, including motor and sensory scores, neurological level of injury, and ASIA Impairment Scale (AIS)
  • Admission/discharge – admission and discharge information outlining the movement of the individual through each care centre, including facility name, date of admission, admission category, and date of discharge
  • Procedures – details outlining the primary operative procedure to stabilize the spinal column, including operative date, type of approach, type of implant used, neural elements decompressed and intraoperative adverse events
  • Interventions – information detailing specific elements of care provided, including ventilation and rehabilitation therapies
  • Outcomes – information detailing specific measurements of physical functioning secondary to SCI, including quality of life, respiratory function, bowel and bladder management, pain description and management, spasticity, pressure injuries, and other secondary complications

Past RHSCIR Reports

2017 Report

2017 Report

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English

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Français

2016 Report

2016 Report

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English

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Français

2015 Report

2015 Report

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English

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Français

2014 Report

2014 Report

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English

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Français

2011-2013 Report

2011-2013 Report

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English

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Français

Accessing RHSCIR Data

If you are interested in more details than our published reports provide, data can be requested for any of the RHSCIR-permitted purposes below:

  • Clinical support and management
  • Research support
  • Partnerships and quality improvement
  • Quality data and information
  • Business planning and future development

Please email dataservices@praxisinstitute.org to indicate an interest in accessing RHSCIR data. Please include the following details in your message:

  • Name
  • Organization
  • Brief description of your request
  • Reason for the request

 

We will guide you through the process required to access the data.


You May Also Be Interested In…

You May Also Be Interested In…

Clinician Education

A variety of toolkits and educational resources to help improve the standard of SCI care.

National SCI Registry

Learn more about Canada’s largest database tracking the experiences of people with SCI.